Happy 19 weeks to my little girl! Kennedy is doing really great! They lowered her vent settings so that it's no longer giving her any breaths and she's doing all the breathing on her own. It's only giving her pressure support which means it's just pushing air into her lungs. She's been doing great with it so far and her oxygen is still at 21%. After her G-Tube surgery they're going to switch her to an LTV vent which is a mobile, home ventilator and will be the one she goes home with. She's been handling her feedings well too. Hopefully she keeps it up so we can get her back to Jersey!
Daddy was away for the weekend so me and Makenzie took Nana to Philly for a Girlee visit. It was a really great day! Kennedy looked great and was smiling so much all day! Nana finally got to hold her granddaughter for the first time! It was so wonderful to see! I also changed Kennedy's strings for the first time by myself. I was so nervous but it wasn't as scary as I thought it was going to be and the more we do it the more comfortable we'll get. I can't wait till she's closer so I can see her any day I want!
Here are some pics from our visit. Enjoy!
Love to all,
The Crist Family
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