It's the little things that count!

So there's not much more to report since Friday. Kennedy has continued to have a good weekend! With the results of the procedure on Friday the doctors say it's just about time now. They're going to try tweaking her settings a little bit everyday to get her to a comfortable spot for them to try to extubate. When that'll be really depends on how she responds but we're not in a rush. Of course we want her off but the next time we try we want her to come off the vent and stay off so if she needs more time than we'll give her time! For now she's getting bigger and stronger every day and that matters a lot!

So for now she will be staying in CHOP. Arthur and I feel it's the best place for her and we feel we have to at least let them try to get her off the vent. I personally feel if she's ever going to get off it'll be CHOP that gets her there. They're really great and the care she gets there is just fantastic!  She's reached these little milestones just in the two weeks we've been there. She got to meet her sister, we get to hold her anytime we want, she's wearing clothes, she's listening to music (she loves Norah Jones!), she's maintaining her body temperature,  she was never put in a closed top incubator at all since she's been there! In fact, just today she graduated to a crib!! See picture below! These may seem like small steps but to us they're huge! And when we see the difference it makes to Kennedy it means even more!! Hopefully we'll have a lot more milestones to celebrate in the next few weeks!

Love to all,

The Crist Family

11 weeks old and graduating to a crib!