Kennedy had a broncoscopy done on Friday to check her lower airways to see why she's so agitated. He said that she has subglottic stenosis which is basically severe swelling and scaring right below her vocal cords. This is causing her airways to become severely narrow allowing only a little bit of air to pass through her airways when she breathes. He had no choice but to put a breathing tube back in and put her back on the vent. They are giving her a high dose of steroids to try to get the swelling down but even if the swelling goes down a bit they don't think it will be enough. She is scheduled for another broncoscopy on Friday and they will also perform a tracheostomy.
There is so much about this surgery that upsets me and scares me but I can't think of that right now. I need to focus on the good things. She can finally start to be a baby and smile and laugh and play. This will finally bring her home to be with her family, all four of us under one roof. And Kenzie can finally start to be the big sister she is dying to be. This isn't a permanent solution, she'll be able to have it removed, hopefully within two years, and Arthur and I know we had the doctors try everything they could for her. This is what our little girl needs.
We're trying to mentally and emotionally prepare ourselves and our family for Friday. You all have been so loving and supportive during the last 16 weeks and it means more to my family than words could ever express. If you could continue to keep Kennedy and our family in your thoughts and prayers, especially on Friday, it would be greatly appreciated. I will update when I can.
Love to all,
The Crist Family
Arthur, Katie, Makenzie and Kennedy
Kennedy Crist was born on March 23, 2014. She was 2 lbs, 2 oz, 14 inches long and 14 weeks early. This blog is to help keep all of her friends and family updated on her progress.
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